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UKTS: Melhorando a vida dos pacientes com talassemia
A UKTS é uma instituição de caridade nacional que se dedica a melhorar a vida das pessoas que vivem com talassemia. A organização foi fundada com o objetivo de fornecer apoio, educação e defesa às pessoas afetadas por essa condição.
A talassemia é uma doença genética do sangue que afeta milhões de pessoas em todo o mundo. É causada por uma anormalidade na produção de hemoglobina, que leva à anemia e outras complicações. Indivíduos com talassemia requerem tratamento e cuidados ao longo da vida para controlar seus sintomas e manter sua saúde.
No UKTS, entendemos os desafios enfrentados pelos pacientes com talassemia e suas famílias. Estamos empenhados em fornecer-lhes os recursos de que precisam para viver uma vida plena e saudável. Nossos serviços incluem:
Grupos de Apoio: Oferecemos grupos de apoio para pacientes, familiares e cuidadores afetados pela talassemia. Esses grupos fornecem um espaço seguro para os indivíduos compartilharem suas experiências, fazerem perguntas e receberem apoio emocional.
Educação: Fornecemos recursos educacionais sobre talassemia para pacientes, profissionais de saúde e público em geral. Nosso objetivo é aumentar a conscientização sobre essa condição para que mais pessoas possam receber diagnóstico e tratamento oportunos.
Advocacy: Defendemos os pacientes com talassemia nos níveis local, nacional e internacional. Trabalhamos em estreita colaboração com os formuladores de políticas para garantir que os pacientes tenham acesso a cuidados e opções de tratamento de alta qualidade.
Pesquisa: Financiamos a pesquisa de novos tratamentos para a talassemia em colaboração com as principais instituições acadêmicas do mundo. Nosso objetivo é encontrar melhores maneiras de gerenciar essa condição para que os pacientes possam viver vidas mais longas e saudáveis.
Nossa equipe no UKTS é formada por profissionais de saúde experientes, apaixonados por melhorar os resultados para pacientes com talassemia. Trabalhamos em estreita colaboração com nossos parceiros em agências governamentais, hospitais, universidades e outras instituições de caridade no Reino Unido e na Europa que compartilham nossa missão.
Se você ou alguém que você conhece vive com talassemia, nós o encorajamos a entrar em contato conosco. Estamos aqui para fornecer apoio, educação e defesa de todos os afetados por essa condição. Juntos, podemos fazer a diferença na vida dos pacientes com talassemia e suas famílias.
ukts.org
